Showing posts with label Neurology. Show all posts
Showing posts with label Neurology. Show all posts

Not Special Interests

Note: I wrote about this a bit in an old post via some edited-to-add stuff.  I doubt anyone has seen it.  But just in case someone has and then they read this. I don't want them to mistakingly believe they're having deja vu.


I have decided that not all of my so-called special interests are actually special interests.  I came to this realization after developing my first actual post-Australia special interest. .  

I have decided that the not-special interests are either

a) Stressful Interests

b) Hobbies

c) Passing interests


Israel is an example of a stressful interest for me.  I haven't been obsessively learning about Israel, because it brings me joy and comfort.  It's about seeking validation, ammunition for debates, understanding, etc.  

Other examples for me: Autism, Neurology/seizures, Narcissism, American elections/politics, Covid, and Ant-racism.   (Pretty much most of what I wrote about on this blog after I stopped writing about Australia.  I pretty much went from writing about a special interest to writing about stressful interests...kind of sad)  

Hobbies are things that I very much enjoy doing, but they're different from special interests, because I don't have an interest in obsessively learning about them.

Currently these for me are: Playing The Simpsons: Tapped Out, Feeding our backyard wildlife, and Taking care of our backyard plants.  I'm VERY flora and fauna lately.

Passing Interests are things that I'm interested in temporarily as they're happening in my life.  This usually pertains to travel and TV shows.  I might be passionate about a show as I'm/we're watching it.  But soon after I'm done with the season, the interest fades, and it doesn't come back until I/we watch the next season.  

This is the same with Disney World.  I am mildly/moderately interested between visits but become much more interested when actually planning the vacation and while we're there.

Often when he are there, I imagine I'm going to keep up the level of passion, and I make plans to continue checking out the line lengths and restaurant availability through out the year.  But I soon lose the motivation to do that.  

We have a Disney trip coming up in a few months.  To be honest, the travel anxiety is overshadowing the passing-interest feelings at this point.  But I did have fun making the reservation on the DVC website.

My last passing-interest was probably The Walking Dead, because we finally got around to watching season ten and eleven; then watched three of the spin offs (Daryl Dixon, The Ones Who Live, and Dead City)


So....whether you're autistic or not.  If you have special interests/obsessions/passions, does any of this resonate with you?   What have been your special interests, hobbies, stressful interests, and passing interests?



Mental Health Symptoms

 Around the same time that I downloaded the Dreaming App, I also downloaded a Symptom Tracker app.  

I had downloaded about three or four before finding one made by someone named Adam Cziko.

The Cziko one works best for me, because there are (for now) seemingly unlimited symptoms and treatment slots.  Plus, you get to write in your own terms vs. choosing from a list.

I have some weird symptom, so I really did not like that some of the other apps tried to fit my weird symptoms into a neat little rigid box.  And/Or limited the number of symptoms I can list. Because I got lots.  

My only worry about the Adam Cziko app is that it tells me to upload to premium for unlimited symptoms and treatments.  I'm open to uploading to premium.  But when I click on upgrade to Premium, I get this:


That would all make a bit of sense if this was a paid promotional post or another kind of arranged promotional post.  But it's not. The only logical explanation is that Adam Cziko is psychic and knew I was going to write this post eventually.  

Or maybe it's a lucky glitch.

My worry is that I'm going to become very dependent on the app; then suddenly get a message that my freebie days are over.  That won't be so bad if it's reasonably priced like the lucid dreaming app.  But what if the symptom app is $6 a month rather than $6 dollars a year?   Or what if it's $25 a month?  Or even higher than that?

I shall also have to make sure that something sneaky doesn't happen—that my promotional access doesn't quietly end without my realizing it and suddenly I've somehow renewed the subscription.  

Anyway....onto what I actually meant to talk about.

So...on the app, I have added various physical/neurological type symptoms.  And I also have seven mental health symptoms. I keep adding more.  I added one today.  It's not as if the added symptoms are new.  It's more like I thought I could just stick the symptom under another category but then realized it's better to have a separate thing.  Or in some cases, maybe I feel kind of....something? I'm not sure the feeling.  But I feel reluctant to add new symptoms.  

Maybe it's like I feel I'm being greedy.  

So....

The first symptom I added was anxiety. It's all that dreadful worrying.  

I'd say about 10% of my worrying comes from known imminent threats and the other 90% comes from being in touch with reality.  I mean bad things DO happen.  I'm not going to sit here and say my anxiety is irrational.  If I worried that a Great White Shark was going to come through the toilet and bite off my ass, THAT would be irrational.  But there's a lot of bad shit that happens in the world.  I worry about bad things happening, and I worry about people I love being hurt or feeling super hurt.  

I also worry about things that other people would see as small stuff.  Like vomiting.  Because it's a phobia of mine.  Or I worry about how people are going to react to a text I sent.  I have a fair bit of social anxiety...or probably more precisely communication anxiety.  It's this worry that I may have accidentally wrote the wrong thing....like an offensive Freudian slip.  Or that I said what I meant to say but now I've made someone horribly mad.

On the symptom app, you get to mark the symptom each day as being none, mild, moderate, or severe.  Well...none is actually marked by default.  Otherwise, that would be a pain to have to go through and mark every single thing.  But anyway...this allows you to see how often and how strong the symptom is for you.

I have anxiety a lot: 5 none days. 14 mild.  17 moderate.

The next symptom I added was insomnia.  There I'm doing pretty well: 28 none. 6 mild. And 2 moderates.  I should add, though, that I often take Benadryl or Melatonin...and now I also have the Lucid Dreaming blue pill to add to my repertoire.   

I added overstimulated at some point.  This is where I feel hyper inside.  I get overexcited...often over-socially-active.  I'll get really into posting and interacting on Instagram or I'll become a chatterbox in the family text streams.  I guess it's maybe sort of like being manic?  

It can probably be a good thing if I'm out at an actual social event...or if my family is actually enjoying me being talkative.  But then when I want it to stop, it's hard for me to do so.  Why do I want it to stop?  Well, because even though, in a way, I'm having fun....at the same time, I don't like the feeling.  It's overwhelming.  I feel out of control.  And maybe there's also the fact that though I'm sort of enjoying myself at the time, there will likely be ramifications later.  Such as....feeling stupid, pathetic, or embarrassed for what I said or did during that hyper period.  (more on that later).

On top of all that, if I'm busy being social or my mind is racing to the point I can't concentrate, it's a struggle for me to finish what I had planned to get done that day.  

All that being said...I've not had many days of the overstimulated feeling: 26 none, 6 mild, and 3 moderate.

Next on the list is self-doubt.  This is the only symptom that I've marked a day as severe. Outside of that, I have 4 nones, 15 mild, 15 moderate.  

Severe for me usually equals me feeling I should make my blog private. 

 I know the worst for some people would equal attempting suicide.  I'm not suicidal.  I DO sometimes wish to be dead.  But that actually rarely comes out of self-doubt/self-esteem issues or depression.  For me, it's the anxiety, OCD issues, and hyper-empathy that makes me grateful that death exists for all of us.  Sometimes I get overwhelmed worrying about things and just want it all to be over.  Or I imagine one day encountering a vomit disaster and think when I'm dead, I won't have to worry about such gross things anymore.  And I've actually had times where I am so horribly sad for someone that I feel I can't take it anymore.  The craziest thing about the latter is that often I don't actually know or have any real evidence that the person, on my mind, is actually experiencing the dreadful emotions I'm imagining them feeling.  

Okay...I've digressed a bit again.  

Back to self-doubt.  It's really just self-esteem issues.  It's often about my lack of success and employment....which can worsen into feeling that I have no talent or worth. 

There's also the imposter syndrome.  Am I REALLY autistic?  Am I totally ridiculous for thinking that I probably have epilepsy?  Do I dare consider myself a novelist or screenwriter?  Do I dare say I've experienced childhood trauma?  

There's also the feeling that I'm a bad mom, a bad wife, a bad family member...a bad person who deserves all the rejection that I've received.

I feel like a stalker sometimes...worrying that I commented too often on a influencer/podcaster's post.  Or if not a stalker at least a pest. *

There's that worry that people are nice to me, because they feel bad for me or because they are simply polite; but secretly they are actually disgusted by me.  

I am making this all sound very bad.  And it actually is.  But...it's not the worst, because I'm not feeling it constantly.  At times I feel okay about myself.  Sometimes I feel very good about myself.  Often I'm feeling the good and bad feelings at the same time....like with writing this post.  A part of me thinks I'm writing something that will be interesting, relatable...raw and honest. Valuable.  Another part of me is feeling this post is shamefully self-indulgent and boring.

The next emotion symptom I added was stress.  For this I have 13 nones, 17 mild, and 3 moderates.  There are lots of nones not because I have great coping methods but because I have a pretty low level of stress in my life...compared to many others. See above: self-doubt.

It could be that I sometimes mark stress under anxiety.

I've been using the stress symptom for times that I worry I won't be able to finish all that I planned to do that day.  I'm very rigid about that.  I have this set things of things I want to get done....most of it is hobby stuff.  If I get the idea I won't finish it all, I start getting stressed.

The other thing that REALLY stresses me out (but maybe I've put it under anxiety?) is medical appointments.  I'm past due for blood tests and the dentist.  I'm very much due for a dermatology test. I think I've had one of those my whole life....probably decades ago.  It will soon be time for me to have a colonoscopy, and I should start getting the yearly mammograms.  Plus I probably need a general check up for menopause.  

Oh...and I should probably also eventually continue with the neurological diagnosing stuff.  

I've been handling all these shoulds with procrastination.  When I think of ending the procrastination, I get overwhelmed with the number of medical appointment things I should do.

Wait. I forgot something.  I should also maybe see a doctor about my frozen shoulder injury thing.  

So yeah.  I get overwhelmed and very stressed.  Plus...as a member of the United States, it's not just the hatred of being at the doctor's office, interrupting my routine, etc...but the financial implications.  

Besides procrastinating, my other technique to appease my lack of doctor-visits is to remember what I HAVE recently accomplished appointment-wise.  A few months ago, I finally went to an eye doctor, for the first time in my life, and got prescription glasses, and I'm doing the autism-diagnosis-adventure. So that's something.   

Onto the next thing.  

OCD stress. I'm not officially diagnosed with OCD yet, but I'm not making light of the word.  I know people get very uptight about that.

I am pretty sure I have contamination style OCD.  This means I get grossed out by the idea of being contaminated by certain things—vomit, feces, urine, garbage, etc.  I do a lot of hand-washing, a lot of wiping things down, a lot of pestering Tim about whether he washed his hands or wiped things down.

You know when Seinfeld threw his belt away, because it touched the toilet?  That is VERY MUCH me.

Today I took a shower much earlier than I expected to, because when I went to try to wipe up some toilet cleaner that had dripped on the floor, my hair touched the toilet lid.  

Now I wouldn't count the shower as the OCD stress.  If I can take an action to alleviate the feelings of stress, than I don't really count it.  When I would count it is if after taking a shower, I still felt contaminated.  Or if I didn't have time to take a shower or I had already taken a shower that day, or it wasn't supposed to be my shower day, and I felt plagued by the feelings of contamination.  

Being grossed out by hair touching the toilet lid might not be incredibly unusual.  But I've also been plagued by things that other people would see as very common and unconcerning.  Sometimes I can manage to ignore these things  Other times I become stressed until I do something like change my shirt or wash my hands again or wipe something down once more.  

For the OCD stress stats: 9 none, 10 mild, and 3 moderates.

If you're into counting and you notice all these numbers don't add up to the same total, that's because I added the symptoms on different days.

The symptom I added today is despair.  

Today is definitely NOT the first time I've felt despair.  And I've mentioned these dark feelings on my blog at various times.  

I don't know why it took me this long to add it to my list.  It might have been because I didn't know what word to use.  It seems people are wanting the word depression reserved for something that is long term, diagnosed, and pervasive.  So, I didn't want to use that.  

But then.....

Today I decided to add it after the feeling randomly hit me.  Like it often does, it came on as a sudden wave.  

I Googled melancholy and despair to see which would fit better.  Despair definitely seems like the more appropriate term.  It feels very much like a Dementor has suddenly passed over our home.

I feel very fortunate in that the feeling doesn't often last long.  But it's a bad enough feeling that even a few minutes is really shitty.  

Despair is feeling that there's this dark cloud over everything, and it's going to get worse and worse.  Really bad things are going to happen. Nothing good is going to ever happen again.  And even if good things do happen, I'm not going to have the capability to be happy about them.  When they come on quickly and then go away quickly, it makes me wonder if they're some kind of seizure.  

Anyway...that's it for now.  If you're like me and have lots of symptoms and are wanting to keep track. of them.. I tentatively, highly recommend the app. If it ends up being expensive, I may take back the recommendation....especially if it's in a sneaky way.  Since they don't openly reveal what the price is, if it IS expensive, I will see that as being sneaky.  





*-Wanted to add that rationally speaking, I don't think I'm overly pesty or a stalker when it comes to popular people on social media. I probably comment a reasonable amount.  I think what's really going on is I secretly wish to be noticed by them, accepted, liked, brought into their inner circle, etc....become successful like them, etc.  These feelings sometime lead to me feeling pathetic...or if they don't respond as much as I wished, I feel rejected.  And feeling rejected over that makes me feel guilty and pathetic.    




Read my novel: The Dead are Online 

  

Sensory Issues

I wake up, because of my bladder.

I get up and go to the bathroom.

Then I can't go back to sleep.

My underpants are too uncomfortable.

Sometimes even soft, lovely, easygoing clothes are too uncomfortable.

Sleeping on my back makes my clothes feel extra uncomfortable.  But I need to wear my noise-canceling headphones, because Tim is snoring.  I can't sleep on my side with my headphones on.

I think about how I can't solve my problems by closing the blinds and just being naked all the time. Because if I didn't have clothes, I'd be feeling the blankets or the furniture on my skin.

I'd have to stand all the time.  But I hate standing.

And also....

I'd feel the carpet on my feet or the dust on the floor.  Often I can tolerate those feelings. But sometimes I hate it.

I think about how, in the past, I would have these horrible hard-to-explain feelings of extreme discomfort.  I had thought maybe they were connected to my myoclonus...my abnormal brain waves, etc.  I start to wonder if I had been wrong and that maybe these were/are moments of extreme sensory intolerance.  Maybe even just being alive in human skin is sometimes extremely uncomfortable.  

Feeling all this and thinking about this makes me feel unhappy and hopeless. Tortured.

I remind myself that I don't always feel this way.  

Yes, my dry hands often bother me, and I keep having to put on lotion through the day....and also periodically during the night.

Yes. I am bothered a bit by my clothes...even when they are soft, lovely, easygoing clothes.

Yes, I am bothered by the fan making me too cold.

Or the fan-not-being-on-high-enough making me too hot.

Or the carpet rubbing against my toes.

Or my blanket feeling tight on my neck.  

Or my bladder feeling full even though I peed like thirty minutes ago. 

But when I'm busy, I can often ignore these feelings. 

And despite various discomforts, I do manage to often fall asleep.  And though it's not always easy for me to stay asleep (because of bladder, hungry cats, snoring, etc), I do often manage to get back to sleep.

Still, though....

Tonight I feel shitty.  


A Grey cat lying on a pink blanket on a bed
The blanket that failed to comfort me
earlier tonight, but usually I love it.
And though Annie wakes me up too much,
she usually brings me a ton of warmth
and comfort when she lies next to me.




How would our world change if we knew for sure there was life after death, and it was easy for our dearly-beloved to talk to us via the Internet?   

The Dead are Online, a novel by Dina Roberts 

Karen, Please Don't Sit So Close To Me

I had a Covid 19 dream.

I think this is my fourth or fifth.

So in this dream.....

We are siting in the den. Tim tells me he and his sister are planning to take a trip together in July. I'm annoyed, because he has been so careful about the whole quarantine thing. So why now does he think traveling will be okay by July?

Our friend Karen is there. She comes and sits close to me. I don't want to make a fuss, so I just discreetly move to another seat. Then she follows me there as well. 

I move away again and remind her about social distancing. She sheepishly tells me she keeps forgetting about that.

Based on my other dreams and conscious feelings, my guess is that the dream is 90% about coronavirus anxiety.  Though I think I might actually be more scared of the people than the virus.  I think the virus has just awakened something in me that I was somewhat suppressing.

I see people talking about wanting to get back together and hug their friends. I have no such desires!  And I really thought I liked hugging.  I thought I was a hugging type person.

Well, I'll see how I am after the pandemic has ended.  Maybe it's just a temporary aversion that I'll get over.

Note: I'm happy to hug my husband and son.  But the thought of touching anyone outside that small circle and getting close enough to smell them....it just makes me feel yuck.  And I wasn't like that before.

Anyway, I'm going on a tangent again.

I'm wondering if the other 10% behind the dream was Karen-related. I've had anxiety lately about whether or not I'm a Karen. I haven't called the police on any Black people or bothered a Black person for simply taking up space. Which is the worst aspect of a Karen.

I don't have the Karen-hair. Nor am I demanding a haircut. I haven't gotten a professional haircut in about 16 years, actually.

I don't ask for the manager.

BUT....I have been an assertive, complainer at times.  The main times were when I had problems with neurologists and neurology centers. There's a question of where do we draw the line between being rightfully assertive and being a Karen.

And maybe you can have rightful indignation but handle it in the wrong way.  For example, at the third neurologist, I spoke out because their bathrooms had zero soap.  And I went to two of their bathrooms!  I thought that was quite disgusting. I complained to the front desk. I didn't yell at them, but I think I acted kind of Karen-like.  I've been thinking...was it really their fault that the soap was out?  I could have probably talked to them in a more gentle way.

Earlier, with the second neurologist, I demanded an apology for how they treated me. I definitely still think they owed me major apologies. But was it too Karen to demand the apology?  And would things have turned out better if I hadn't demanded the apology. Or would they have still walked all over me?

Anyway, I'm going to have to learn how to balance sticking up for myself with not wanting to be a Karen.

All that being said, the dream could have also been due to the simple fact that I don't have a huge social circle, and three people in that circle are named Karen. There's family friend Karen (the one in the dream), my mother-in-law Karen and cousin Karen. And it's not unusual for me to dream of these Karens...even before Karening became a thing.



Read my novel: The Dead are Online 

Triggered!

Being triggered means something different to everyone.

For me, it's having my hands shake so much that feeding the cats becomes quite difficult.  

Now I'm thinking it's interesting that the last two times I've been very triggered, the immediate task after the triggering event was feeding the cats.

But anyway....

I won't blame all my shaking on my being triggered.

I've been diagnosed with an essential tremor. So, I do often have bits of shaking at random times.  

But being stressed, afraid, angry, or cold definitely exacerbates the tremor.    

The simple act of responding to an email from a family member can be very triggering for me. I start to feel very cold, I start shaking, and I find it very hard to stop.  

One time I was writing a blog post about family issues. I was so triggered that my STOMACH was shaking!!  

And when we went for a zip-line adventure on a family cruise, I was so terrified...My brother-in-law pointed out that my leg was shaking. Or maybe it was my butt. Probably my butt AND my leg.

Interestingly, though, while my tremor is exacerbated my stress, that doesn't seem to be at all the case for my myoclonus (jerking). With that, it seems to be almost the opposite. The more calm I am, the more myoclonus I seem to have. 

I think some people believe too strongly in the idea that brain problems cause mental health problems. And some people believe too strongly that mental health stress causes physical problems.  I think it's a balance of both. I think I have brain issues, AND I think I have mental issues due to interpersonal family problems. Combined together...

Well, sometimes it can make feeding the cats somewhat more difficult than it usually would be.

But it's not as bad as the night two months ago where I was feeding the cats and my legs literally gave out, and I collapsed onto the floor. Twice! I don't remember being stressed at the time, so I'm guessing that was more brainy/physical.

Or...it was demons.

Or a Poltergeist? 

Aliens?  

Who knows....


Read my novel: The Dead are Online 

Silence

An episode of The Fosters annoyed me today.

In a previous episode, Jude (Hayden Byerly) suddenly stops speaking. He's diagnosed with elective mutism, and the plan is to be patient and understanding towards him.

There's a really sweet scene at the beginning of "Mother" where Jude's sister Callie (Maia Mitchell) acts very understanding and tells him not to let her or anyone else pressure him to talk. I thought about how that was so nice, and how I wish my family members were like that.

But then....

Towards the end of the episode, Callie tells Jude he has to talk to her, and the other people who love him, because not doing so is selfish.

What!?

No!!!!!

Okay. Maybe we should give Callie a break. Because the reason she says this to Jude is that earlier her other brother, Brandon (David Lambert) pushed her to stop keeping her rape a secret.

Yeah. How many women (or men) have come forward about rape and not been believed?

In season one, Callie herself was actually punished for coming forward about the rape.

It is not selfish to want to keep things to yourself...even your whole voice.

For personal reasons, I really could not stand Callie calling Jude selfish. Then the episode pisses me off, because her insult works. Jude starts speaking again. 

I really don't like the idea that the show is pushing—that we can cure people of their emotional problems by calling them selfish.

Fuck that.

Anyway, I took the episode personally because I have closed up at times.

I don't go completely silent.

But I do go through phases where I keep things to myself. I avoid talking about myself.

This comes from years of experiencing things like emotional invalidation, minimizing, gaslighting, blatant disinterest, misunderstandings, etc.

A couple of summer ago, I was very upset.

A new cat had found its way into our lives. No I was not upset about the new cat. That was a very happy thing.

But....

I felt Annie was too young to be left alone while we all went to the lake house. Someone needed to stay home with her.  The fourth of July weekend was approaching. I suggested to Tim that we split the weekend up. He spend a couple of nights; then I spend a couple of nights.

Tim got very tense and talked about how he needed to be there to cook the vegetarian part of the meal.

I was quite taken aback by this, because, besides me, there's only one other vegetarian.  (And now I'm thinking, couldn't he have also made something ahead of time and then just had someone reheat it?).

Tim changed his tune slightly in the days approaching the weekend. But it was too late for me. The thing is, I already had a huge amount of insecurity about my family preferring Tim over me.  I mean not from this one conversation but from years of things said, not said, done, and not done.

What I really wanted was for someone in my family to question why I was the one staying home with Annie and not Tim. No one said anything.

Now, to be fair, it wasn't in the plans for me to be completely absent from the lake house. Tim picked me up for an afternoon visit.

I was not doing well on that visit.  Annie was in heat, and that was very stressful. I was still very hurt by the fact that Tim was getting all the nights at the lake house, and no one seemed to care. I was dealing with my new neurological symptoms. And on a lake house boat ride, my sister said something that really hurt me and stressed me out.

I ended up crying at the lake house. Sobbing.

It was not a good time for me.

I went home.

My mom texted me and offered to pick me up the next day if I wanted to come back to the lake house.

I texted back and told her maybe but that my brain and emotions were not doing well. So..also maybe not.

I very stupidly expected her to text back and be a sympathetic listener.

She didn't do that. She responded by saying, Let me know if you need a ride. Love You!!!!

On the surface that sounds very nice. She offered to give me a ride. She says she loves me. What's there to complain about?

But...well, below the surface was my problems and feelings being ignored.

The next day I kind of bitched her out about this, and I really let my feelings out. I talked about how the Tim thing really hurt me. I talked about how the family often acts that Tim is more important to them.

I also talked about how the family is often asking Tim to do them favors, and how, when at the lake house I asked Tim to do me (His wife!!!) a favor, I was mocked.

The message I was trying to convey to my mom is that A) With my family, I should come before Tim B) With Tim I should come before the family.

I am not self-centered enough to think I should come before everyone in the whole wide world. But with certain people I should come before other certain people.

Make sense?

Well, somehow this message got completely twisted. From what I could gather from future angry messages from my dad is that me feeling not-loved-enough somehow turned into me accusing my parents of treating Tim like a slave.

WTF????!!!!!

Between the dramatic text conversation with my mom and the angry email from my dad, we went on a cruise where, I might have imagined it, but I felt a coldness from my parents. Well, the fact that my dad later revealed he was angry about what he thought I said during the conversation, I had with my mom, makes me think it was probably NOT in my imagination.

OR maybe not, because sometimes I have very suppressed anger towards someone, and I feel completely fine towards them until we get in a fight that suddenly reminds me of the suppressed anger.

So...I don't know.

Anyway, I became so frustrated by my parents twisting my hurt feelings into a criticism of them not treating Tim well enough that I suddenly decided to become estranged from them.

It was a fairly mild estrangement that lasted about 2-3 months. I still wished them a happy anniversary. I still said happy birthday to my mom and gave her a gift. I didn't completely shut them out of my life, and I wasn't completely cold towards them.

I give a range for the ending, because it didn't suddenly end over night. It just slowly faded.

In October I went to my sister's 40th birthday party.  My mom and I had a hug there.

I spent a night at the lake house over Thanksgiving. I didn't totally kiss and make up with my parents. But we were civil with each other.

In December, my niece had surgery.  My dad and I lifted a lot of the ice between us via conversations about Apple Pay and vending machines.

A short time after that, I started having conversations with parents again. One such conversation was about a parenting issue I was having.

On a later date, I talked to them a lot about my neurological issues.

The estrangement was very much over.  Not only was I no longer estranged with my parents but I was (stupidly) opening up to them.  I was letting down my guard and letting them in.

Then about six months after the end of the estrangement, I got angry with my dad. Throughout the non-estrangement months, I had told him a LOT about my neurological issues. I wrongly believed he had listened and understood. But he said something that made me see he had NOT been listening well. He had totally NOT understood.

We got into a fight about this, and my dad then told me he was worried about my estrangement from the family AND criticized me for not talking about my child as much as my sisters talk about their children.

Here I am upset that my dad didn't listen well enough to me, and he's complaining that I don't talk enough???!!!!

Why the hell should I open up to him or my mom when I did so for months, and he labels that time as me being estranged?  Did he not notice I had been talking to the family a LOT for the last several months?

It takes courage for me to share my feelings with my family, especially my parents. Because opening up to my parents is like putting quarters in a slot machine.  Once in awhile, they SEEM to be listening and understanding. On rare occasions, they will say something wise and comforting. But most times, they end up making me feel invalidated, angry, and hurt.  And well...really. When I win, it's more like winning money in the slot machine; then later learning out the money has poison ivy oils all over it.

It might SEEM like they're listening and empathizing/sympathizing. But later they'll say things that make me realize they totally do not get it.

Note: I have poison ivy rashes right now, so that's why I'm using that analogy. 

Anyway, I spent months of not being estranged from my parents. I spent months bonding with them, talking to them, etc.  And all my letting down my guard and opening up seems to have been for nothing.

So yeah. It really rubs me the wrong way when someone is labeled selfish for being silent.

Now if someone becomes silent, or holds back, because they WANT something and are trying to get what they want with a manipulative silent treatment?  That's very different. That IS selfish.

Holding back, though, because you're scared, insecure, distrustful, etc. that is not selfish.

And sometimes opening up to certain people is NOT courageous. Sometimes it is foolish.


Read my novel: The Dead are Online 



My Fake/Wonderful Life

October 2- My dad texted me this morning. He wanted to know if I wanted to go out to lunch with him.

I told him I didn't want to, because I was mad about what he had said about my neurology stuff.  After all those conversations I had with him, the emails, the article links, etc. he still doesn't understand the difference between my tremor and my myoclonus!  I told him I felt that if we went to a restaurant together it would turn into a public fight.

Okay, maybe I shouldn't get mad about something like that. But it bothers me when I feel someone hasn't listened to me...especially about something that's important to me. Is that immature? I don't know.

Well, my dad majorly apologized!!! He was so sweet.  He said he's sorry for getting confused and saying something stupid.  I accepted his apology. Really. How could I not?  Then we ended up going to the Thai restaurant he's been wanting to go to.

It was a lot of fun. I really love my dad. We have a great relationship.  I feel so lucky to have him.

October 7- My dad sent us an email today kind of being pushy about selling our house. He and my mom have been generously helping us live in a house that's now beyond our financial capabilities. Tim and I have been talking about moving for the past few months, but we haven't really put our heart into it. We've been LAZY.

Well, my dad has helped us along by telling us that they're going to stop helping us with the bills for the house.  Yikes!!!!

It's cool, though. 

It was the kick that we needed.

And we're both excited about living somewhere new.  I used to move so move so much when I was younger, and now I've lived in the same damn house for fourteen years.  It's time for a change!!!

That being said, moving is supposed to be one of life's most stressful experiences. And whether my issues are caused by psychology or neurology, stress is probably not good for me.

My parents made sure that I know that they understand this. They said they are happy to help in anyway they can...minus financial stuff, of course! Oh and also no cat sitting, because my mom is allergic.

November 5-Tomorrow I have my neurology appointment.  I've been so anxious and upset about it, since the last neurology experience was awful.  But Tim has been SO sweet and supportive.

He said after my appointment, we'll do something special together. And after that, he'll be by my side for the rest of the night.

I'm so glad to have so much love and support at this difficult (and annoying!) time.

Wait! Please don't get me wrong. I'm not that high-maintenance!! I don't need all this TLC every time I have a doctor's appointment. But because of the nightmare with the last neurologist, I'm needing some extra love this week.

November 6-My neurology appointment went okay.  I didn't get any answers yet...but maybe someday soon?

Tim was wonderful. We all went out to eat after my appointment.

Okay, he wasn't by my side ALL night. And if he had been, I'd probably feel suffocated. But we did spend a lot of time together....mostly just on the couch watching TV, talking, cuddling, etc.

We watched some of the election together. We're both so happy Beto won!!!!!

November 22-Happy birthday to me!!!!

No gifts, because I'm not really a gift-loving person.  And I especially don't want to add more clutter to our house.  But Tim bought me a yummy dessert from the bakery.  He knows I love sugar.  He's good at making me feel loved and special.

January 3- Sorry. I haven't written in awhile. I've been busy. WE'VE been busy!!!!! You know...with the house and stuff.  It's not like we work day and night.  We still have time to do fun things like watch our favorite TV shows. Tim plays his video game.

But we get a lot of work done each day. A lot of times we work together.  We'll go through a room together, decluttering, cleaning, talking, listening to music, etc. We make fun of our old stuff and sometimes have little debates about what should be thrown away.  It's actually very romantic.

To me, things like walks on the beach and candlelit dinners are not romantic. What's romantic is working side by side with someone...having a common goal and getting there together.

February 1-I felt so sick earlier tonight.  I'm feeling better now, but....

I just felt really weird. I didn't know if it was my neuro issues or if I was getting a stomach illness. I felt like I might have to run to the toilet...for something. It's like something was going to happen, but I didn't know what.

I asked Tim if he minded if we stopped watching our show and continue tomorrow.

He was very concerned. I guess I looked awful. Or...well...really, he's concerned anytime I'm sick. He worries a lot.

I told him I was going to go to the bathroom. He asked if I needed him, and I said not right now. He asked if I'd be okay if he took a shower.  I said, yes. Actually, I needed some space....

I had some time alone.  Then when I felt a little better I went in the kitchen to feed the cats. Tim rushed in and told me to go back to my room and go to bed. He'd feed the cats.

So sweet!  And it WAS nice to crawl into bed.

February 3-  Things are going very well. Our house is looking so much better. I'm so proud of all of us for working so hard.

Things aren't perfect, of course. I still have my neurology symptoms. But that's okay. And Tim is so incredibly supportive.  Every day he asks how I'm doing, if I'm feeling okay, if I'm having any new symptoms, etc.  It's very sweet.  And it makes me feel that although I have problems, I'm totally not alone. Do you know what I mean?

There are times that I do more of the housework than Tim. He's busy with a big, exciting project. But I'm okay with that, because he has already DONE a ton of work. Also, he's apologetic and very grateful when I do extra work. I love that he notices what I've done, and he acts so impressed. It's very sweet.

My life is wonderful.




Read my novel: The Dead are Online 




Edited to add: (Years Later) Times I have felt too much alone

When I mourned the loss of my fantastical circle of friends that turned out not to exist

When I concluded that I had an eating disorder and decided to stop making my main goal in life being-very-skinny.

When I was showered with hate by some other bloggers

When I mysteriously lost my appetite and was scared I had some kind of dreadful disease

When I realized I was losing leg hair in my 40's and worried I might have a circulation issue

When my myoclonus started and I told people, and they didn't seem at all fussed.

When months after having a DVT, I was nervous about a short domestic flight coupled with driving.

When four years after having a DVT, we planned our first post-international vacation and not one person told me to be careful or ask me if I'm taking precautions.







Neurologist Fears and Hopes

I have my appointment with the NEW neurologist in November.

I'm a bit nervous.

I imagine the appointment, and in my imagination, it always turns out horribly. I leave feeling angry and hopeless.

So...here are the scenarios I fear will happen.

1-The doctor hasn't looked at the EEG report from DFW Neurology; nor has he looked at the EEG snapshots. This is because either they never faxed the form to DFW Neurology; DFW Neurology got the fax but never sent in my records; or the new neurology center did get my records, but they never bothered to look at them.

I show the doctor the EEG report and the snapshots. He looks at them for about 3 seconds; then says. You don't have epilepsy.

If I'm feeling brave and assertive, I would say to him, Uh, no. You can't even dismiss epilepsy with a 30-60 minute routine EEG. So you certainly can't rule it out after looking at 90 seconds of my brain wave activity.  

2. Same first paragraph as above.  But in this one, the doctor looks at the EEG report and the EEG snapshots and says something like.  Well, these don't look like seizures to me.  But since the report says they saw seizure activity, we'll put you on medication.

This would not be okay with me, because I don't trust the opinion of DFW Neurology. The only reason I'm going to a new doctor is I want a second opinion.  So I certainly don't want them relying on the DFW Neurology's opinion.

Okay. So that's what I fear WILL happen.

Now I'll talk about what I'd like to happen.

In the best scenario (like fantasy scenario, here). DFW Neurology has actually done something decent. They faxed over much more snapshots than they gave to me. So the new doctor has something to work with. The doctor has come prepared to these appointments. Not only has he spent a fair amount of time studying the report and the snapshots, he has asked some of his colleagues to have a glance.

Then the neurologist says either,

A) We looked carefully at the report. It does seem like you are having seizures. We need to talk about medication.

B). We looked carefully at the report. The stuff the EEG software found is something that looks like seizures, but it seems to be actually (insert medical jargon here). Why don't we take a wait and see approach. Let's see how you're feeling in six months, and if you're having more symptoms, we can do another EEG.

In the not-so-bad scenario, the doctor hasn't seen the EEG report or snapshots prior to the appointment. But when I hand him the material I've brought, he studies them for enough time to make me feel he actually cares and is interested.

Then he says something similar to A or B above.

BUT....

Since DFW Neurology provided me with only 90 seconds of footage, and only 30 of those seconds are ones where the computer saw spikes; I think with this version of B, the EEG should probably be done sooner rather than later.




Edited to Add 11/6-I had my appointment today. It didn't go wonderfully, but it didn't go as bad as I feared.

First of all, the doctor seemed super nice and very thorough. His neurology exam was so much more longer than Dr. de Jesus's With de Jesus, it really felt like she was just quickly going through the motions. Or like a quarter of the motions. Her test was probably under 2 minutes. His was about 7 minutes. I was pretty impressed.

Once again, DFW Neurology fucked me over. They did NOT send any of the snapshots of my EEG to the new neurologist, even though I requested this.  I absolutely despise DFW Neurology. I hate them so much that I'm tempted to study dark witchcraft just so I can curse them with horrible curses.

Yeah. Don't worry. I'd save some of my evil spells for Trump as well.

The other thing is....I went to the wrong doctor. I'll take the blame for that.

What happened is we looked at reviews and found this doctor that had really great reviews.  I THOUGHT it said he was an expert at reading EEG's. Then later I went back and saw it said EMG's.  The doctor is an ALS specialist.

At the same clinic, they have a whole epilepsy department. It sounded awesome. I started to write my primary care person to ask if she could switch my referral. Then on a whim, I decided to check the reviews of the epilepsy doctors. Those reviews were not so good.

I didn't switch. I think then I was in the mode of I'm not going to go. I'm going to stop this whole nightmare process. I'm done. And then it evolved to, I'll go if they call me.

I was hoping they wouldn't call me.

But they did.

I asked, the person on the phone, if the ALS doctor also dealt with other things, and they said he does.  It just turns out the other things doesn't include epilepsy.

So....

The doctor is going to help me get a referral.  He said they'll try to get more info from DFW Neurology.

We'll see if that happens.

I doubt it.

I think what we WILL see from DFW Neurology is collection notices asking us to pay for the video portion of the ambulatory EEG that I refused and never had.

DFW Neurology is evil.

Since I don't have witchy powers, I can't make bad things happen to them.  But I can wish and hope.

I doubt my wishes and hopes will work, though. I'm realizing more and more that the shithead bad guys in the world keep winning and winning.


Edited to add 9/12/19-I've avoided giving an update. Mostly because it's all shit.

The new neurologist said he was going to contact my GP and get me switched/referred over to their epilepsy department. It never happened. I didn't hear back from them.

NOW...this could be because I got a bit assertive about the fact that this clinic did not have any soap in two of their bathrooms.  Like zero soap.  I think that's disgusting anywhere. But a doctor's office?

Well, maybe it's good they didn't go through with the referral. If a clinic can't manage to keep up with basic things like soap, can they be expected to keep up with medical tests, records, etc.

Hey...maybe they weren't mad about my soap outburst. Maybe I'm just right. They can't keep up with the bathrooms, and they can't keep up with the referrals.

Anyway....

I haven't been back to any neurologist.

Our drama with DFW Neurology continued a bit. I had reported Dr. Marie de Jesus to the Texas Medical Board. I will say, to their credit, the Medical Board did fight that for quite a bit. Miraculously, I wasn't just dismissed.

I got periodic updates.

At one point, I got a letter asking to sign something so they could use my name in the courts. Or something like that. Unfortunately, we suck at getting mail out of the mailbox. I think I might have signed and sent it too late.

Anyway, short story even shorter. In the end, they concluded that their was "insufficient evidence" that a violation occurred.

My self-esteem is so messed up that I took this to mean, that all along, they were right. I was wrong. There is something wrong with me not DFW Neurology. 

I gave myself a talking to, though. I reminded myself that there are a lot of people who are the victims of violations and the ones who did the violating are found not-guilty.

The letter from the Texas Medical Board didn't say that Maria de Jesus did nothing wrong and that I'm a whiny little bitch who complains about nothing. They said there was insufficient evidence.  I think, because, a lot of it is she said vs she said.

I already know that Maria de Jesus is capable of lying because she lied to me and she lied on the physician notes. So that makes it very easy for me to imagine that she lied to the Texas Medical Board as well.

But I'm glad I made the report. Because if Maria de Jesus tries to pull the same kind of shit again and another patient reports her, maybe it will be then easier for the Texas Medical Board to believe the patient over Maria de Jesus.

In other weird, DFW Neurology news....a few weeks ago, I got a message from my GP office.  They said they got a request for a referral from the neurologist Dr. Nagineni. I had an appointment the following week. They told me they could not grant this referral request until I come in and see my GP.

WTF??????

I had made no appointments with any neurologist. And if I did, it certainly wouldn't have been with Nagineni. Because guess where she works?!

Yes. DFW Neurology! She's actually the doctor I originally had a referral with back in 2018. But when I got there, they put me with Maria de Jesus instead.

Why would I suddenly have an appointment a year later at a doctor's office that I see as my arch nemesis.

And no, it was not a matter of me making a year-later follow up appointment when I had been a patient there last summer.  I remember being a bit surprised that Dr. de Jesus hadn't asked me to make a follow up appointment at our last appointment.

I emailed Sai Duvvuri and accused their office of making fraudulent appointments so they could charge me for a no-show. Where did I get this idea?  One or two of their negative reviewers said they were charged for mysterious appointments.

Anyway, Duvvuri denied it and wished me well. Because he's such a nice guy.

I never heard back from my GP office after telling them how weird the whole thing is. So then I had  to be kind of mad at another doctor's office. Although I forgive them because they gave me 10 more months of birth control pills without me having to beg them.

Other stuff: My neurology drama seems to have ceased to exist...at least in the case of it being a subject matter important to my family.

My family doesn't ask me about it anymore.

I brought it up once with my sister because of the mysterious appointment. It turns out she totally didn't remember that I had all the drama with DFW Neurology.  But at least she did remember that I had neurological issues.

Tim hasn't asked me about it since the appointment last November.

This is astounding because of the fact that he ignored it when I first told him. We later got in a fight about it. He denied treating me in the way I felt he had treated me. Then he temporarily changed his behavior and acted interested and supportive.

I even spoke up again at one point. I think we were already in kind of fight mode. I told him that just because people had stopped asking me about my symptoms, it doesn't mean the symptoms went away. He said something like he understands. Maybe he said he's sorry?  Oh, and he asked me if I felt worse than usual.

But that little exchange didn't change his behavior. He never brought it up again.

And how about when I asked him about his neurology issues? Did that get him to say,  So...enough about me. What's going on with your issues?

Nope.

It really feels like the topic has become taboo.

You know when a child has a behavior the adults dislike and the adults are advised to just ignore it?  I feel that's what's happening here.

I feel my family decided either together or as individuals that I'm making everything up for attention and that the best way to handle this is to not encourage me.  A) don't bring it up B) Act like you don't hear it if she brings it up. C) Change the subject as quickly as possible if she traps you in a conversation.

So, for the last 10 months or so my neurology issues have become like my own little secret world. I don't plan on going to another doctor. And I'll continue with not talking about my symptoms...unless in rare occasions where I'm asked.  For example, my sister did ask when I told her the weird Nagineni appointment news, and I gave a brief answer.  But if I don't bring up anything, I seriously doubt anyone will bring it up.

Even when neurology is the subject of conversation, I'm not asked. Tim didn't ask about my symptoms when I asked about his. And recently there was a discussion about our aunt who has neurology issues. No one stopped and said, Hey Dina. Speaking of that....how are YOU doing?  Because we haven't heard about your myoclonus in like 10 months.

Yeah.

I'm just going to keep things to myself...well, except for this blog. But hardly anyone reads this, so it doesn't really count.



Read my novel: The Dead are Online





The Response From Sai Duvvuri

I sort of expected to get an immediate response from Sai Duvvuri, the office manager of DFW Neurology regarding falsely charging us for a video EEG.

Now I expected the email to probably be rude and very likely to be full of lies and excuses. But I did think maybe he'd at least be prompt about it all.

Well, no response last night.

And no response this morning.

But it does seem like Sai Duvvuri was rather busy with work stuff.

This morning I checked Google Reviews, and there was one new 5 star review posted eleven hours ago and THREE 5 star reviews, posted ten hours ago.  That would be about an hour or two after we sent the email about fraud.

And now their rating has gone from a 2.6 (or 2.8?) to a 3.

I can believe Duvvuri pressured patients to write positive reviews.

I can believe Duvvuri had people write fake reviews.

I have a very hard time believing  that around 9:00-10:00 pm last night, four people suddenly decided to give DFW a super positive rating.

DFW Neurology has 34 reviews on Google ranging from 11 hours (time has passed since I first saw) and 4 years.  That means approximately 12% of their ratings happened last night...after we pointed out their fraudulent billing.

I'm looking at the reviews now. I have to give DFW Neurology credit on their slyness here. Right now it's obvious that reviews were quickly spurned out. But later?  In a month, it will look like the four reviews were written sometime in the same month. In a year or more, it will simply look like the reviews were written in the same year.  It won't look suspicious at all.

It will look suspicious for only a few days.

But let me put it on record here.  Edgar Cervantes, Sandra Villagomez, Yecenia Conchas, and Maira Delangel all wrote their reviews in the same evening, around the same hour.

Three of them got a friendly reply back from Sai Duvvuri only about an hour after they had posted the review.

He didn't have time to respond to our complaint, but he did have time to respond to praise.

I am so sick of men who can't handle criticism, so they find or create fans to run and hide behind.

I decided it would be nice to include some visual aids in this post.  So here is a screenshots from an email exchange I had with Sai Duvvuri.

Email I sent to Duvvuri in August



Duvvuri's reply



Note: If and when Duvvuri responds, I will update this post.


Edited to Add 8:56 10/10/18- I didn't receive an email back. But Tim did.

Duvvuri responded....

Well, never mind about posting it.  I feel weird enough posting emails I've received. I really don't feel right posting an email someone else received. I'll just say it was sickeningly fake and nice.

I guess that's better than his old way of being rude and evasive.

Anyway, I responded by telling them I had reported them to the Texas Medical Board. Which I did....just before reading his email.


And it turns out that although Sai Duvvuri didn't respond to my email, he did respond to a question I posted on Google Reviews about the sudden 4 positive reviews.

He said:
Ms. Roberts, it appears that you do not have any thing else to do than to bug us and keep posting reviews/questions that we do not agree with. I am really puzzled at the extant that you going to harass us. Unlike you, we are busy and do not have the time to keep responding to frivolous posts. But just to get the facts out -- YES, it was a coincidence and we did not solicit them. We are happy....

He was cut off, I guess.

Yes. I actually do feel kind of like a stalker. But what is someone supposed to do after they've been misdiagnosed, lied to, and then fraudulently charged?  Am I supposed to just let this go? Am I supposed to roll with the punches?  Should I just let it be water under the bridge?

Fuck no.

Even though I DO have tons of other stuff to do. I'd much rather be doing something else.

What are Sai Duvvuri, Maria de Jesus, and Victor Remmers doing with all THEIR time? What's keeping them so busy?  Lying on consultant reports? Fraudulently charging patients and insurance companies? Misdiagnosing patients?

All of the above?

Edited to add 10/20/18- On Friday morning (yesterday) Tim and I had another fight with Sai Duvvuri. Since then, three more 5 star reviews have popped up.  It's like magic!!!

Edited to add 10/22/18-After our fight with Sai Duvvuri, Tim wrote a review on Google. Last night I was checking DFW Neurology's reviews....cause I'm obsessed like that. I saw that his review had disappeared. My guess is Mr. Duvvuri had it removed. Now the question is, how did he manage to do that? Was there something questionable in Tim's review? I don't think so. My only idea was that Tim hadn't used his name. Or..well...I think he used the initials of his Korean name. Most other reviewers use a full first name and last name. So maybe un-names look suspicious?

Well, he reposted his review and posted it as Tim. I'll be interested to know if the review stays up.  

DFW Neurology Continues with their Wicked Ways

Here is the not-so-friendly letter I sent to Sai Duvvuri, the office manager of DFW Neurology.

Why did I write him a letter, you ask?

Well, because Tim received our medical bill, and after calling our insurance company, we learned I was charged for a video EEG.  

That's quite funny, because my EEG report is titled "Extended EEG Without Video".

Anyway....here's the email.


My husband is currently on the phone with our insurance company reporting your company for fraud. We got the bill for your video EEG. 

DFW neurology is so incompetent that they refuse to diagnose a patient based on what is shown on EEG and what the patient has reported. The report explicitly says "Patient refused video monitoring so it is difficult to clinically correlate this EEG finding" 

 That annoyed me, because it made me sound like a difficult patient. But I'm so glad you guys wrote it, because it provided us with documentation to send to the fraud specialist. Plus I have emails and phone messages. Since you guys obviously just bought yourself a big fancy toy without doing research first, let me educate you. A video EEG is mostly used to rule out psychogenic seizures. The patient has a dramatic episode and the EEG is compared with the video to check if anything is happening with the brain. Video EEG is NOT used to prove that a patient has symptoms. You're supposed to do this thing called talking to a patient. You know...listen to them. 

 And another thing. I went to my primary care physician. At the first visit she told me she never received consultant notes. So I pushed you on that. Second visit: she received the consultant notes and read a portion to me. She told me the report noted that Dr de Jesus recommended that I see a epileptologist. This is a blatant lie. No one at your office ever suggested I see another doctor. I was the first one to bring up a second opinion. 


 And if you guys were going to lie, maybe pick something a little less humiliating. Seriously. Do you really want other doctors in the DFW area knowing that you're unable to diagnose a patient after a 72 hour EEG? An extended EEG has a very high accuracy rate. The only way it can fail is if the patient was unlucky enough to not have symptoms. I had many symptoms. You can hire as much new staff as you want. That doesn't change the fact that you guys are greedy, incompetent, dishonest, and fraudulent. 

For more information about my drama with DFW Neurology, click here.


Edited to add-11/5/18- Tim told me he got a notice from Blue Cross Blue Shield, our insurance company. They said they PAID their part for the video EEG and that we need to work out the bill with the provider. Or something like that.

I stupidly, completely believed that Blue Cross Blue Shield would be on our side. How dumb was I? 

I thought they would be my advocate. I thought they would protect me against DFW Neurology, and I thought they would punish DFW Neurology so that DFW Neurology couldn't do the same to other people.

I also thought they would be grateful to me that we had stopped them from being conned.

But no.  

So...what is DFW neurology going to do now? 

Will they return the money to the insurance company and tell them a mistake was made? And on that note, we were told by Sai Duvvuri and DFW Neurology's billing department that a correction was sent to Blue Cross Blue Shield. Should I believe this is true?  Did Blue Cross Blue Shield simply ignore the correction?  

Will DFW Neurology keep quiet and keep the money? 

OR

Will DFW Neurology not only keep the money but  also begin to harass us about paying our portion of the bill....which is about 2 thousand dollars.  My prediction is we're going to start seeing notices from a collection company.  I told Tim, and he assured me it wouldn't happen. And if it happens, we'll fight. 

I HAVE been fighting, and it's not working. 

The thing about life is that there is no justice. People get stepped on all the time...and squashed.  It doesn't matter if they fight, and it rarely matters if people fight on their behalf. They still get stepped on. They still get squashed.  

I feel very squashed—angry, depressed, helpless, and hopeless.

Edited to add 11/30-After some of my nagging on Twitter, Blue Cross Blue Shield stepped up to the plate and took our side.  THANK YOU.

We were informed from Blue Cross Blue Shield and later DFW Neurology that Maria de Jesus is no longer at the practice. The form letter from DFW Neurology says that she left for personal reasons. That might be true?  I don't know. 



Read my novel: The Dead are Online 

How Weird Is This?

I have this dream thing.

I'm wondering if it happens to a lot of other people?

Does it happen to ANYONE else?

I guess it would.

It seems impossible that I'm the only one in the whole world.

What happens is when I do certain actions-sometimes mundane-it brings up a memory of a particular dream.

It's like I have a memory flash.

And each action has a certain dream attached to it.

When I deal with my dandruff issue, I have flashes of a Harry Potter related dream.

When I cut my toenails, I have flashes of dream that involved The Exorcist.

When I do certain types of algebra, I have flashes of a dream that involved Bates Motel. I think it's when fractions are involved? Maybe. 

And sometimes when I do my French lessons on Duelingo, I have flashes of a certain dream. I'm not sure what, though.  

It might involve Neighbours.  

And I think the French lesson involves talking about shaving. Well, that's what flashed in my mind when I was writing this down.

I'm not sure why this happens or why I have those particular associations.  

Did my dream self clip her toenails in The Exorcist dream?

Or maybe the day after the dream, I clipped my toenails, and while doing that, I suddenly remembered the dream. Maybe the association got stuck in my brain?  

If it ends up that I DO have epilepsy, I'll probably try to credit that for the phenomena. 

Well...anyway.

It's strange. But I don't mind it.

I like remembering my past dreams...even if it's only in flashes.  



Read my novel: The Dead are Online


Exaggerated Concern

Once upon a time you weren't feeling well.

He was pleased by the results because it made you thin again.

He praised you for looking good.

Then he was told that you're having health issues.

He offered to help.

Because

He has power.

He can get things done.

He wrote a letter

Using his power.

He warned you about the letter.

He told you not to be alarmed by his exaggerated concern.

You weren't anymore alarmed than you had already been.

You were sad.

You were hurt.

You were angry.

You wished he had real concern.

Real concern instead of exaggerated concern.

Real concern versus thinness admiration.

And the letter lies.

There are invented symptoms

Because your symptoms weren't enough for him.

He thought the lies would help.

But they embarrassed you.

You told the doctor the truth about the lies.

You wonder now if he partly blamed you.

Did he know that you hated those lies?

You hope he did.

The health problem faded away on its own

After an invasive medical test.

You do your research

You learn the test was probably unnecessary.

You feel conned.

You feel violated.

You feel wronged.

Years pass.

New Symptoms appear.

It takes you 3 months to tell him.

Because the last time brought you only grief.

You bring it up in a light tone

Because you don't want to be thought of as

A drama queen

A hypochondriac

But you don't want him to be light.

You want him to be concerned.

Real concern

Not exaggerated concern

He shows no concern.

Not real.

Not exaggerated.

He doesn't mention it.

Not the next day when he sees you.

Not the next week.

Not the next month.

Not until a fight leads to a temporary estrangement.

Then he shows concern.

Not to you.

But to others.

The others tell you about this concern.

He cares! He cares! He's so worried! He's so worried!

You learn he wants to use his power again to help you.

You feel a lot of pressure.

But...

You're not eager for the help.

Because

It didn't turn out so helpful last time.

You're afraid that once again the concern is exaggerated.

You don't like how he brags about helping people.

And you remember

That time

When he told you everything you've gotten in life comes from him and his power.

His words let you know that he believes

It was never your hard work.

It was never your natural talent.

It was never your passion or desire.

It was all him.

He apologized for that.

But no sorry could erase what he said.

You hate to accept his help again.

You hate to give him the idea

That you can't help yourself.

You give a thanks but no thanks.

At least for now.

Maybe in the future if your way doesn't work out.

And your way works out quite horribly.

You accept his help.

He uses his power.

He writes another letter.

You start to have doubts.

His way will be expensive.

He would pay.

You know that.

But he has already given you too much money.

You have been reminded of this when you were sad and and angry.

The reminder made you more sad and angry.

You start to back away.

You decide to try again on your own.

You know your way might fail again.

But you know his way isn't a guaranteed success.

So better to take the path where less strings are attached.

He stops pressuring you to accept his help.

He expresses support for your path.

Then later you share a video

And he comments on the video.

His comments reveal

that it's very likely once again his concern has been exaggerated concern.

And despite all you eventually told him about your condition.

He didn't listen.

Or he didn't understand.

He trivialized what's big to you.

And you get angry.

You try to hide the anger.

You don't want drama.

You don't want to explain.

You know he won't understand.

You know he'll just end up reminding you

Of how much he has done for you.

How much he has given you.

How much he has sacrificed for you.

It's best to stay quiet.

But then he wants to go to lunch.

You don't want to go.

You're too angry.

And what's the point of having a conversation with him?

What's the point of answering his questions

If you know he's not listening or understanding?

Should you lie and make up an excuse?

Probably.

But you don't.

You hate lying.

You tell him the truth.

You tell him why you're angry.

This leads to a fight.

And of course you are right.

He reminds you that he has done so much for you.

Because he cares so much.

He's very concerned for you.

Is that real concern or is it exaggerated concern?

The concern isn't for your health, though.

It's for your estrangement from your family.

Funny.

You talk to them often.

There was an estrangement in the past.

It ended 9 months ago.

But still he's concerned.

Real concern?

Maybe.

But no.

It's probably exaggerated.

Instead of going to lunch on a lovely afternoon

Or lying.

You fight.

He reminds you that he is the one.

He is the one who is willing to find you help.

He is the one who is willing to pay for that help.

If you

You and not him.

If you

Think it's more than that minor problem in the video.

The video that addresses a condition you have been already diagnosed with.

A condition that you have not been concerned about.

A condition that you did not get an EEG for.

A condition that you did not get an MRI for.

He should know all this.

He should understand all this.

But he doesn't.

And he doesn't try.

He's too busy

Telling you all he's done for you

And all he's willing to do for you.

He lists things.

He brings up the letter you hadn't even wanted him to write.

The one he kept gently pressuring you to accept.

He tells you he dropped what he was doing to write that letter.

It hurts you

It angers you

That he sees helping you as a sacrifice.

It bemuses you that he would say this

After you had repeatedly rejected his help.

And with his fighting words

He confirms

That you had every reason to reject that help.

You had every reason to turn away from his concern

That was very likely exaggerated.